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The Living With
Hope Foundation hopes to provide research, support, and services
for EM (Erythromelalgia) and other rare diseases.
Our
current medical system has allowed those with rare diseases to
fall through the cracks. There is a distinct lack in the
research for these rare diseases, as well as an absence of the
sharing of what we do already know. The correct diagnosis
often times comes months of even years late. Even if the
problems are correctly diagnosed, there is not always an
established method of treatment.
We offer a place for the
exchange of ideas and experience in treating all aspects, both
physically and mentally, of these rare diseases. We
want to create a community where those in need had come for help
and hope. |
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The Living With Hope tries to
ensure that the information provided is accurate, timely, and
useful. However, the information contained on the website
is not to be construed as medical recommendations or as
professional advice. Neither the authors, the LWH
Foundation, nor any other party involved in the preparation or
publication of the material presented is responsible
for any errors or omissions in information or any results
obtained from the use of such information. Readers are
encouraged to confirm the information contained herein with
other reliable sources
and to direct any questions concerning personal health care to
licensed physicians or other appropriate health care
professionals. Updated January 1, 2008 |