Living With Hope Foundation

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About LWH

 

 

 

The Living With Hope Foundation hopes to provide research, support, and services for EM (Erythromelalgia) and other rare diseases. 

Our current medical system has allowed those with rare diseases to fall through the cracks.  There is a distinct lack in the research for these rare diseases, as well as an absence of the sharing of what we do already know.  The correct diagnosis often times comes months of even years late.  Even if the problems are correctly diagnosed, there is not always an established method of treatment. 

We offer a place for the exchange of ideas and experience in treating all aspects, both physically and mentally,  of these rare diseases.  We want to create a community where those in need had come for help and hope. 

 
     

 

info@livingwithhope.org  -  Telephone 800-928-7906   -  Fax 562-697-3354

 

The Living With Hope tries to ensure that the information provided is accurate, timely, and useful.  However, the information contained on the website is not to be construed as medical recommendations or as professional advice.  Neither the authors, the LWH Foundation, nor any other party involved in the preparation or publication of the material presented is responsible
for any errors or omissions in information or any results obtained from the use of such information.  Readers are encouraged to confirm the information contained herein with other reliable sources
and to direct any questions concerning personal health care to licensed physicians or other appropriate health care professionals. Updated January 1, 2008